Healthcare
Pioneering Healthcare Change: Enhancing Rare Disease Management Using Non-Clinical Data
Patient advocates are reshaping rare disease care by layering socioeconomic insights into treatment strategies beyond traditional clinical approaches
Key takeaways
Patient advocates are reshaping rare disease care by layering socioeconomic insights into treatment strategies beyond traditional clinical approaches
In the realm of healthcare, how can technology and patient engagement be specifically tailored for rare disease management, aiding individuals in effectively navigating the complexities of both their medical and personal challenges associated with rare diseases?
Rare disease advocate and FinThrive Innovation Director Brian Urban addressed this intricate issue. He advocated for a patient care approach that transcended conventional clinical methods in rare disease management, and further underscored the need for integrating socioeconomic data into healthcare practices. The aim would be to offer a more personalized and effective care system for patients with rare diseases.
That type of workflow reconstruction with non-clinical data is one of the most impactful things that I'm seeing within this particular space.
— Brian Urban, Innovation Director at FinThrive
“That type of workflow reconstruction with non-clinical data is one of the most impactful things that I’m seeing within this particular space,” Urban said.
About the author
Brian Urban has a deep skill set in health promotion and product development for rare disease and senior populations with Large Health Plans and Specialty Pharmacy. Urban has served as a speaker on such topics for the Alzheimer’s Association, Obediah Cole Prostate Cancer Foundation, Cigna Corp and Utica University Institute for the study of integrative healthcare. Urban has received a Masters of Science in Exercise Physiology-Health Promotion, Masters of Business Administration in Market Development and is currently completing a Masters in Public Health at Dartmouth College. Urban is currently a research-fellow sponsored by a Robert Wood Johnson Grant supporting Utica University public health research in Upstate New York.
